my poor fort saves

Post/Author/DateTimePost
#1

trappedslider

Feb 15, 2009 0:45:42
About four years ago my helath started to decline and i was in and out of the hospital so much,everyone on the medical floor knew me along with the ppl in the ER. And I was unable to keep a steady job because of it,so about late last year i applied for social security and i was able to get it,which allowed me to medicaid. That allowed me to vist the doctors i needed to vist an to find out that I have the wrost asthma in town acording to my lung specialist. However he started me on this new drug called Xolair which helps keep my allgies in check,which helps keep my asthma in check.

Before i started the shots, I took alot of prednsione and one of the side effects of it is A vascular necrosis or Osteonecrosis in both of my knee areas. Which required an operation on my left knee,that went well and the right one has healed itself.

Well, during my recovery from the knee operation I had felt pain in my hips and my left shoulder,I thought it was just me not being used to walking,turns out i was wrong. The pain is because I have Avascular necrosis or Osteonecrosis which means means, literally, bone death.

ON/AVN is caused by a blockage or loss of blood flow to a joint or bone, causing the joint/bone to die. Usually, but not always, the hips are first affected, then, other joints may follow. It can strike
any bone or joint in the body. The bone tissue/joints actually die, just as heart muscle tissue dies from a heart attack. If the damage is extensive enough, there is the potential for the damage to render the diseased joint ineffective for life unless proper, timely treatment is received.

So,currently due to the area where the dead bone is having collapsed there is nothing that the doctor can do other than wait for the main in my hips to get to the point where i can't stand it anymore because of my young age and due to the reason that hip replacements require maintance which means more operations.

I WANNA RE-ROLL!
#2

Master_Vega

Feb 15, 2009 0:55:42
I'm not sure how to reply. You have my condolences, though. I can't imagine what it's like to be in your shoes.

Keep hope, though. One of these days you're going to roll a twenty.
#3

AnimeSniper

Feb 15, 2009 1:07:40
I hear what your saying... I took Medicine A since I was 13 and find out that I was supposed to have periods where I would be taken off the medicine for say the summer... didn't happen... age 19 I get prescribed Medicine B for severe back pain and find out that Med A if I was still taking it would have mixed with Med B creating a Toxin that could have killed me... luckily I stopped taking Med A at 18... Seriously, where the heck is the doctor checking out our existing prescripts and informing we the patients if the new stuff will interact lethally with them or cause serious problems for us down the line....

I understand the hip pain since I have degeneration in my L5 vertebrae... but we live on and deal as best we can but seriously I would like a reroll also!
#4

backstabbist

Feb 15, 2009 1:10:57
Cant you find a guy about your height & weight,
abduct him, use his body for a Skeleton Transplant,
and leave him in a cheap hotel bathtug full of ice or something?

Dude, you got some messed up bones.

Maybe you can sue and get an Emancipated Invertabrate separation by the court, and collect damages from your skeleton.
#5

AnimeSniper

Feb 15, 2009 17:09:29
yeah... it just irks me when doctors do that and they, most really where I live, never follow through with monitoring your symptoms or for the noted side effects of taking said new drug for disease X or with existing medicine A...
#6

backstabbist

Feb 15, 2009 18:07:44
I prescribe Tequilla:
Copious amounts of tequilla 3x daily with meals... or without, I'm flexable

You can trust me, just look at my saintly avatar
er... how about Semi-Saintly
#7

AnimeSniper

Feb 15, 2009 18:32:51
:evillaugh , true but russian vodka, japanese Sake', well any alcohol will normally kill pain in copious amounts... though the normal drug/alcohol intermix really throws you... or the pill mix, med A with 2/1/1 of overcounter stuff equals varying results
#8

trappedslider

Feb 15, 2009 18:40:37
:evillaugh , true but russian vodka, japanese Sake', well any alcohol will normally kill pain in copious amounts... though the normal drug/alcohol intermix really throws you... or the pill mix, med A with 2/1/1 of overcounter stuff equals varying results

I prescribe Tequilla:
Copious amounts of tequilla 3x daily with meals... or without, I'm flexable

You can trust me, just look at my saintly avatar
er... how about Semi-Saintly

I don't drink alcohol....
#9

AnimeSniper

Feb 15, 2009 18:48:54
I don't drink alcohol....

I don't either... the last time I had a single beer was 5 years ago and that was after a hard day of construction type work on my house and it was to relax... went to slleep about two hours later
#10

Ragitsu

Feb 15, 2009 20:32:03
I had a "Mike's Hard Lemonade" once. Does that count?



:D


:embarrass


#11

tema69

Feb 17, 2009 16:56:54
@Trapped: I'm sorry to hear that. I hope you get better.
#12

trappedslider

Mar 04, 2009 1:19:40
this hs also ruined my summer plans of going to Gencon for the frist time too
#13

trappedslider

Apr 30, 2009 0:42:55
With the divorce done and finalized, It looks like I may lose my SSI and be put on getting the payments from my dads retirement which could mean a loss of my Medicaid,so if that happens then my life expectancy drops down to a year if not shorter..

I plan to go talk to the folks at the social security office as soon as i'm able to about this issues,hopefully it won't come to that.
#14

azisien

Apr 30, 2009 10:20:36
Well this thread is just depressing.

Hope you get better. Fingers crossed for some kind of transplant or stem cell or what not.
#15

Ragitsu

May 05, 2009 1:12:37
That sucks .

I'm not an eloquent writer, but that had to be said.
#16

the_narrator

May 05, 2009 2:44:01
Sorry to hear about all that, boyo. Last August I was sick as all get out for a good long while before finally going to the doctors. After seeing the doctor once a week for over a month and getting scips for med after med after med that wouldn't work, I switched doctors and found out I had non-Hodgkins Lymphoma. After six months of treatment and something in the area of all the monies worth of medical bills, I'm more or less cured, but with the immune system of an eight-year-old school girl. And to think, I used to never get sick!

My condolences, friendo.
#17

trappedslider

Jul 09, 2009 8:31:13
Apparently my sinuses are all clogged up to the point where I will be under going an operation that will go up my nose and clean them all out next week.


And I'm currently waiting for the Social security folks to decided my fate as what happens for me income wise. However I am hoping that I Will be bale to see my son in August.


My hips are doing well enough that the doctor has decided to wait till December to give them another look see before deciding to operate on one them.
#18

Ragitsu

Jul 09, 2009 21:19:36
Hm. I misread "hips" as "hps" :P.
#19

Ragitsu

Jul 11, 2009 0:30:17
Apparently my sinuses are all clogged up to the point where I will be under going an operation that will go up my nose and clean them all out next week.

I've been to surgery before as well. Having to stay in bed for a few days after was not pleasant.
#20

trappedslider

Jul 11, 2009 0:37:11
I've been to surgery before as well. Having to stay in bed for a few days after was not pleasant.

This will be the second time i've gone in for an operation
#21

trappedslider

Jul 14, 2009 8:07:34
At 11 am MST I will be admitted to the hospital for the operation,so wish me luck and all that and if i fail my save I've already informed my mom as to who to contact here to let you all know what happened.
#22

Master_Vega

Jul 14, 2009 11:13:57
Good luck, dude. I hope all goes well and that this is the last operation you'll need for a long time (in the positive sense.)

Action points are your friends!
#23

Ragitsu

Jul 14, 2009 12:28:37
At 11 am MST I will be admitted to the hospital for the operation,so wish me luck and all that and if i fail my save I've already informed my mom as to who to contact here to let you all know what happened.

Godspeed.
#24

narukagami

Jul 14, 2009 12:47:22
Anybody know how to cast Bear's Endurance IRL?
#25

trappedslider

Jul 14, 2009 23:29:15
I am back at home now,wearing what i canbest discribe as a chin guard with padding under my nose to help with any drainage. I'll have to wear it for about a week depending on the extent of the drainage.


The next major oepration that i will be having is most likely going to be my hips at some point next year most likely


EDIT: I think all of the folks who took part in it used the Aide another rules alot:P
#26

Ragitsu

Jul 16, 2009 19:12:13
Good to know we've got you for at least another year .
#27

trappedslider

Aug 12, 2009 12:41:45
a slight turn for the bad


Okay I was getting my medicaid via having payments from the SSI trust fund,however with the divorce they revalulaed my status and changed it from SSI to child benefits from my dad's retirement.

What this means is that at the end of the month I wil lose my medicaid and there by the medication that has made the biggest difference in my life, the Xiolair injections,in case your wondering they cost 15,000 for three of the shots,which is what i take.


So,hopefully I can enroll in some other program that will cover the cost of the shots,but untill then my money for non medications has dropped down to nothing
#28

backstabbist

Aug 12, 2009 13:29:50
have the court Emancipate you,
so you can get out from retirement 'child benefits' and back on the goverment dole
#29

trappedslider

Aug 12, 2009 14:28:10
have the court Emancipate you,
so you can get out from retirement 'child benefits' and back on the goverment dole

I was under the age of 22 when they declared me to be disabled,so thats why i was put under child beneifits